AS POLÍTICAS PÚBLICAS E A QUALIDADE DE VIDA DAS FAMÍLIAS COM CRIANÇAS COM AUTISMO: O CASO DA INTERVENÇÃO PRECOCE NA INFÂNCIA

Recent research work has demonstrated that autism affects the quality of family life in all dimensions of impact, namely in terms of physical and psychological, material and social well-being, including self-determination and rights. The literature has also shown that the post-diagnosis period is a phase of great trial and instability due to a sudden change in the routines and dynamics of household members compared to what would be expected. Early childhood intervention (IPI), a policy measure that is the subject of study in this doctoral thesis, aims precisely to support the child and the family at this critical moment of adapting to a new reality for which they were not prepared. This investigation aims to problematize and understand the contribution of the aforementioned policy measure to the quality of life of families with children with autism, between 0 and 6 years of age. The finding of a neutral effect of IPI on most of the quality-of-life dimensions studied, as well as the imbalances observed in the implementation of the measure, allowed us to formulate a set of recommendations to improve the performance of IPI for the quality of life of children and their families.

Author : José Miguel da Graça Estevão André Nogueira

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